About NCCC

Mission

To help women, family members and caregivers battle the personal issues related to HPV and cervical cancer and advocate for cervical health by promoting prevention through education about early vaccination and regular screening.

The Coalition includes:

  • Patients, survivors, family members, friends, and caregivers
  • Women’s groups
  • Health care providers
  • Biotech companies
  • Cancer researchers
  • Hospitals
  • Organizations providing cervical cancer detection programs
  • Other related associations

NCCC Services

History

In 1996, Randi Kaye was the co-owner of a women’s health niche laboratory with her husband, Alan. As co-owners of the women’s health lab, Randi and Alan were concerned for women with cervical cancer and HPV disease and who felt isolated. With a desire to give back to the community, the Kayes founded the National Cervical Cancer Coalition (NCCC) to address what they saw as the unmet need for a grassroots resource group to help women and caregivers searching for information on HPV, cervical cancer, and support services.

The Kayes met a new challenge in 1998 when Randi, a non-smoker, was diagnosed with lung cancer. Alan became Randi’s primary caregiver and together they battled a variety of cancer-related challenges—chemotherapy, radiation, coping techniques, clinical trials, nutrition, emotional health, pain management, related side-effects, and more—while raising their two young children, Joshua and Andrew.

Randi never gave up hope and outlived every clinician’s expectations. She was known to say, “No person is a statistic,” and went on living a quality life day after day, week after week, month after month. While in the midst of her cancer battle, Randi, along with Alan, went to Washington, DC, for a march to raise awareness of the need for additional funding to fight the war on cancer.

Randi died in June 2001 and remained  a true hero to those whose lives she touched. Read more about Randi and Alan’s story in this profile in the Los Angeles Times.

NCCC Merges with ASHA

In 2011, NCCC merged with the American Sexual Health Association (ASHA), a nonprofit with a long history of educating and raising awareness on sexual health issues. ASHA has also worked in the area of HPV and cervical cancer education and advocacy for decades. In 1998, ASHA created the National HPV and Cervical Cancer Prevention Resource Center to address the lack of nationally available HPV and cervical cancer prevention information and resources. Among the services offered by the resource center was the first national HPV hotline. 

ASHA continues to offer accurate and up-to-date information about HPV and cervical cancer prevention today, and provides a voice in advocacy efforts to increase the awareness of HPV and cervical cancer prevention.