NCCC was founded in 1996 as a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. In 2011, NCCC merged with American Sexual Health Association (ASHA), a nonprofit with a 100-year history of educating and raising awareness on sexual health issues. The NCCC has thousands of members around the world, and chapters across the U.S. NCCC’s sister organization, the Global Initiative Against HPV and Cervical Cancer, works throughout the developing world as a platform to empower people, communities and societies to reduce the disease burden from HPV and cervical cancers.
Back in 1996 Mrs. Randi Kaye was the co-owner of a women's health niche laboratory with her husband, Alan. As co-owner of the niche women's health lab, Randi and Alan were concerned for women who had cervical cancer/HPV disease and who felt isolated and unsafe. Randi and Alan desired to give back to the community and began the National Cervical Cancer Coalition (NCCC). As soon as the NCCC began its operation, it became apparent to Randi and Alan that there was a tremendous unmet need for a grass-roots resource group to help women and caregivers that were searching for information on cervical cancer, HPV, support services and advocacy.
In 1998 Randi, a non smoker, was diagnosed with lung cancer. Randi's husband, Alan became Randi's primary caregiver and together they battled issues related to Cancer such as access to accurate information, chemotherapy, radiation, coping techniques, Clinical Trials, nutrition, emotional health, pain management, related side-effects, cancer funding and Cancer issues while raising children. Randi and Alan's children (Joshua and Andrew) were ages 9 and 12 when Randi was diagnosed with cancer in June, 1998. Randi died June, 2001. Randi never gave up HOPE and out-lived every clinician's expectations. Randi would say; "No person is a statistic." Randi went on living a quality life day after day, week after week, month after month and was a true hero to those whose lives she touched. While in the midst of her Cancer battle, Randi and her husband, Alan, went to Washington DC for a march on Washington in 1999 to raise awareness of the need for additional (NCI) funding to fight the war on cancer.
Read more about Randi and Alan's story in this profile in the Los Angeles Times.
To help women, family members and caregivers battle the personal issues related to cervical cancer and HPV and to advocate for cervical health in all women by promoting prevention through education about early vaccination, Pap testing and HPV testing when recommended.
The Coalition includes:
- Primarily women, family members, friends and caregivers
- Women's groups
- Healthcare providers
- Bio-tech companies
- Cancer researchers
- Organizations providing cervical cancer detection programs
- Other related associations
- Support services for NCCC grass root chapters whose mission is to educate their community about HPV and cervical health issues.
- Phone/email pals for those needing to speak with someone who’s “been there.”
- Free materials that educate about HPV and cervical health, including cervical cancer.
- Bi-annual conference.
- Tools for prevention, detection and screening awareness.
- Quilt project - Quilts that travel the country and help to place a personal face on the battle against cervical cancer.
- Hotline for women and family members battling issues related to cervical cancer and HPV disease: (800) 685-5531
- Extensive outreach during Cervical Health Awareness Month in January.
The NCCC Inspire Community
Join our online community at Inspire! Through this community you will join hundreds of patients, family members, caregivers and healthcare providers in sharing personal experiences in a safe, secure environment. We hope you will feel empowered to ask questions, share stories and, most importantly, feel reassured that you are not alone.